A team that’s part of what was supposed to be an ambitious effort to fight Alzheimer’s disease, and other forms of dementia, has put off making any major proposals related to paying for long-term care services.
The team, the National Advisory Council on Alzheimer’s Research, Care and Services, is simply recommending that the United States try to get more information about the impact of dementia-related costs on people with dementia and their caregivers.
The country should “develop information about the impact” and “identify approaches to address negative effects,” the council suggests, in a presentation given last week in Bethesda, Maryland, at the Research Summit on Dementia Care.
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In a related report that was presented at the summit, the council fleshed out that proposal.
The council suggests that someone should get “comprehensive, descriptive information” about costs, including out-of-pocket spending figures for people who already receive Social Security Disability Insurance (SSDI) benefits but are still in the 24-month waiting period that SSDI recipients must go through before they qualify for Medicare.